I've been suffering from a constant headache since over 2 years.
I've been to many different doctors and hospitals, even been to a "Psychosomatic" clinic last year. (I wrote a bit about it on another thread already)

I always was a reclusive person my whole life long. But that became even "worse" when this constant headache started 2 years ago, which pretty much made me kind of become a hikikomori.
There was no real cause that made the pain come, it was just there all of a sudden. At first I thought it would be just a simple headache. After a month of non-stop pain I was worried and began visitting doctors.
So far I was at many neurologists and other doctors that deal with the head and other people such as "natural health professionals". Nothing was diagnosted organically at all, so it was said there is something wrong with my psyche. That made me wonder alot because nothing really happened at the day the pain came.

I am currently weekly visitting a psychologist. But it seems very pointless to me. I don't even really want to go, just going outside makes the pain worse.
It is said that I am highly depressive, but I doubt that. I laugh every day of joy and have alot of fun. Mostly to distract myself from the pain.
I think I've already gone insane several times because the pain doesn't stop. Painkillers do nothing, just like all the other medicine and drugs out there. You could say I'm resistent or even immune to medicine.
I sometimes hit my head against the wall if it gets too much, I often pass out by doing so.

I don't know if it is just the pain, but I began to "forget" things very fast. This "forgetting" is quite shocking because it's not like a usual forgetting. It's like the things that happened never happened. At least to me. So if someone tells me I did this and that, I get a little shock everytime cause I don't know anything about it. The only things I know is the NOW. Kind of sounds like alzheimer to me...
I also forgot about my whole childhood, which really is a pain because I couldn't really live out my childhood, since I don't even know what I have done when I was a kid. The only thing I know is that I always had many sicknesses (and still have). That's why I would rather wish to be a child again.
Due to my weak body I happened to tend to have blackouts and get dizzy VERY often. But that only came since the headache is present. Everytime I do something "exhausting" or even pick up something heavy, I get all black in front of my eyes and sometimes pass out. Or I just fall down due to the loss of balance I get from the dizziness.

I don't attend to school since about one year now, I even cancelled it because I had no hope on it anymore. No concentration at all.

I've read many things about headaches from pretty much everywhere, but nothing helped.

So I ask you, HC, if you know anything that might help, any advice, or something that could lessen the pain.
Or is anyone here who has been through the same, or has the same symptoms and might share his/her thoughts?


PS.: Sorry for the huge wall of text, couldn't write it any shorter. In fact, I could even write even more details. >.<

better diet/exercise
weed also knocks my headaches out

do you have glasses? if not you might need them, if you do the prescription might need changing, also, if you have flourescant lights in your house or room they might cause headaches, also did the headaches coincide with a new tv or computer screen or laptop even? the mhz of some screens can cause headaches. not sure what else to suggest. It could be even something electronic in your room that is giving off the frequency that causes the headache, its been known to happen. Try turning everything electric in your room off, at the plug sockets and see if it goes away after a while.

Is there times in the day when its not as bad?

It sounds like you maybe suffering from migraines and not headaches. Your description of blackouts and dizzyness is quite common with migraines - especially if you see small patterns flashing about.
Sleep can be quite beneficial, as well as removing/avoiding the source which maybe causing it. This can be tricky because sometimes you have no idea what it could be (food, lighting, certain sounds, staring at screens, stressful situations, etc).
Sometimes it maybe induced by increased temperature, I know that if I do physical tasks and it's hot aswell, I start to feel abit light-headed. Try drinking more water to keep yourself hydrated.

I hope that helps things abit.

I'm having a diet since several years now, that is because I have alot of "allergies" to almost all kind of food.
And about weed: A friend of mine recommended it to me. Maybe I'll try it out when I'm really lost, I don't usually do drugs.


I do have glasses but I only wear them when I am not in front of the computer. I used to wear contact lenses, but when the headache started I kind of stopped and wore glasses. Wearing glasses made my head hurt more after a longer while, that's why I pretty much don't wear it at all anymore, only when really needed. Also, I got a new computer screen since a year, so the pain already started before that. That can't really be the cause.
A doctor already told me to not use any electronic things for a while. I did so for 2 weeks, not touching the computer or anything like that. I just read some books to pass the time. It also didn't help.
I don't feel the pain when I'm sleeping. That's why I like to sleep. But the problem with that is that I have big problems with falling asleep. It takes several hours for me to fall asleep. Especially because every touch with my head hurts, such as putting my head onto a pillow.

I often do see weird patterns in front of my eyes, so I thought it could be migraine too. Especially because I'm very sensitive to light and noise.
But it's a headache that is constant, it doesn't stop like a migraine would. Migraines might take a while to go away, but I don't think it would last non-stop for 2 years.
Doctors also said it is no migraine because it is constant. But I think it is some kind of mix of a headache and a migraine, cause I sometimes feel worse than usual and just everything hurts so much that I have to lay down and rest.
Thanks for the advice, I'll drink more water than I usually do then.

When you went to see the neurologist, did they perform brain scans? If so, did everything turn out normal? This seems very strange.

Have you considered the possibility of something putting pressure on your brain or spinal cord that could cause pain and dizziness? Very small things can affect the central nervous system. I would definitely maintain a healthy diet at the least, but try to get scans of your brain and spinal cord taken if you haven't already. I have also heard of a disorder that causes the sufferer to be in chronic pain for seemingly no reason. Maybe research that as well. I don't remember what it is called, sadly. Regardless, I wish you the best of luck in diagnosing and treating this.

I've had 2 brain and spinal scans in a 1 year interval. All is fine, they said.
That's the reason I'm getting sent to Psychologists etc. It doesn't seem to have to do with anything organically.
At least I'm glad they believe me. Since there are cases where doctors and parents just say you pretend to have pain to get attention, while the sufferer feels even more depressed and lost. I hate people who say that. They probably don't know what it's like to be in such a pain.

Thanks for researching, I was always looking for problems with headache on the internet, not for chronic pain...I could have thought about that earlier.
That 2nd website there has mentioned "acupuncture". I was thinking about that, maybe I should try it out.
I've been to a person who did "acupressure" and some kind of massaging. Didn't help, so I think I'm gonna see if acupuncture might help.

Also stress was mentioned. That's pretty much the first thing doctors ask, if I got some kind of stress.
The only stress I had was when I went to that weird clinic, but otherwise I got no stress at all. I've always been fine with school before the pain started.

Anyway, thanks for helping.

I have no idea what's going on with your head, but I can testify to the fact that problems can be psychosomatic. In Dec 2008 I sent a letter to my GP, describing myself and seeking to be passed on for ASD evaluation. The next day having very bad experience with psychiatry, I began serial sneezing. My eyes itched at times, I was very snotty and my nose literally went from normal to blocked with goo in a matter of seconds. My ears were weird.This lasted nonstop until about easter 2010. At which point it seemed that the employment bureau (which the shrink contacted) had given up on me, and the waiting was over. (I had waited for evaluation, result and summoning nonstop.) I had not done or eaten or been in contact with anything out of the ordinary before, during or after that time. It came suddenly and disappeared equally suddenly.

I don't like diagnoses like Chronic Pain Syndrome. They are blanket terms used for unexplained pain. Most things aren't unexplained and if researched further, have an answer. What you describe does sound familiar to me... but I can't think of anything specific. I think FONEternal is on the right track though. Even if you have had scans done, there are things that can still be hard to detect, such as paraganglioma that could cause your symptoms.

I doubt this is "in your head" so to speak. Anytime doctors can't find an answer for something, then the patient must be depressed. I can't say I've ever had any of psychosomatic response like that. You're best bet is to keep being persistent until you find out what's really going on.

So, Skilpadde, your problem just came and vanished? You had no treatment or anything?

And yea, I feel pretty lost not knowing the issue, just saying it is mental pretty much tells that they got no other solution and are clueless.
They say there doesn't have to be a "cause" to solve the problem. I should stop looking for an issue and work on the problem. But isn't that kind of paradox? If there is no known issue, how can the problem be solved?
I'm confused by all this...

Have you considered Anemia?
I'm anemic, and I always get dizzy, always very fatigued, I have pain in my body almost constantly, and my memory also sucks. Though I have many mental disorders along with health disorders (and this has been from young childhood).

Considering the fact that laughing and having fun helps you with the pain, I'd say you should continue that until you find SOMETHING about it. But really, read up on Anemia if you haven't yet.

Common/basic symptoms of Anemia:
■Fatigue
■Pale or yellowish skin or yellowing eyes
■A fast or irregular heartbeat
■Shortness of breath
■Chest pain
■Dizziness
■Cognitive problems
■Cold hands and feet
■Headache


Anemia can go unnoticed, and the symptoms may worsen as they go untreated. Do you have Restless Leg Syndrome? That's another thing Anemia MAY do, I'm one of the people who has it.

Dementia may happen in Vitamin B-12 Deficiency Anemia. Your memory loss could be Dementia.


For some reason, I think you should really check out Anemia.

Whoa, I have exactly all these symptoms! Even Restless legs. I never knew there was a name for these symptoms.
Thanks for telling! I'll go to my doctor right tomorrow and check it up.

You're welcome. Anemia's a terrible thing, but if it's from defficiency, it's pretty easy to treat. Genetic, I"m not sure.

That's correct.

Despite my mother's hints that maybe I should see a doc, I never went. ( I HATE doctor's apoointments)
And there was nothing else in my life that changed. Not the food, no epopsure to furry animals, nothing new, nothing I did different.

but once I started to relax, about 15-16 months after it began, it ended as abruptly as it had started. And it wasn't like the symptoms were modest; serial sneezings going on for hours (not kidding) every day, sneezing tens of times an hour, and lots of goo, plus itchu eyes and nose, and the weirdness in ears that one sometimes can get when flying.

I knew exactly what caused it, but I was helpless to stop it. But after quarreling with the representative from the bureau of employment, I think she gave up, anf after not hearing anything for a couple of months, I stopped feeling dread when I opened my email. Now I fear that if I do find a new mail from her, that it'll all start a new.

But since you can't think of anything that could've triggered it, I doubt this is the case for you.

If Norikon's suggestion doesn't work out, you may wish to check for vitamin deficiency. My mother was always cold, and lacked energy; it turned out she lacked one of the Bs.

I hope you will find out of it, and that you'll post here once you know. Now you got me curious.
The ones that told you that it was psychosomatic, sure were making it easy for themselves! They couldn't figure it out, so yuo're to "blame". Docs... It wasn't that long ago no one "believed" in or understood HFA/AS, SPD, ME or whiplash, just to mention some.

But were you generally stressed at the time?


These are worrisome, I hope you have mentioned all of these to a doctor, as well as whatever diseases you have had/have now, in case there is a connection. Side effects of meds? Even food allergies can have weird effects on people. Blood pressure? Too high can cause headaches, dizziness, shortness of breath and problems with sight. Too low can cause dizziness when you rise.

You really need to stop doing that.
After Nemo's death in May I have hit my headwith my fists every day upto a few days ago, in grief and pain. I have gotten headaches a lot now, and begun to feel a little out of it. I may have stopped it for now, although I had a little relapse yesterday. I know pain works well against pain, I do it now and I have done it in the past, but at the very least you may wish to find another way of self-harming, as it will definitely not lessen your symptoms. I have beaten my arms and legs at times, for small pains, pressing a hand or an arm against the wall, can help.
I hope you will see a doc and get help!

Yes, I believe that it is definitely either a vitamin deficiency or Anemia.
Vitamin B is important. Do not take too much Vitamin C. I heard that it will give you kidney stones.

Constant headache for 2 years, significant problems with several types of memory, dizziness, blackouts, difficulty concentrating, fatigue . . . and they say it's not something organic? That doesn't sound psychosomatic at all. It sounds like an organic neurological problem that happens not to show up on a brain scan.

What other medical tests have they done? Have the symptoms gotten worse over the past 2 years? Have doctors looked at your whole body or just focused on your central nervous system? It sounds neurological, but it could be that a problem somewhere else is affecting your nervous system. A lot of different things could hypothetically cause those symptoms.

If I that was happening to me, I would stop seeing the psychologist and pursue this more assertively with medical doctors until I found a doctor who recognized that it's probably organic and started trying to find the cause. It sounds incredibly painful and possibly pretty serious.

Best of luck!

And too much of A will poison you, since the body doesn't rid itself of excess A, but stores it.

Back from the doc. My blood is very fine, even better than average. There is no chance of having anemia. My blood pressure is 130/90, which is not bad I guess. So it seems I got nothing related to anemia...Know how to check on Vitamin defieciency? By blood too? I forgot to ask that when I was at the doc.

Sry, I can't write more, as I'm flying to Finland tomorrow. I can't come here for 12 days then.
I pretty much hope from this that it might be good for me, might help with these issues of mine...
I'll respond to the others of you when I'm back, and I'll tell if I feel any better by it.

My mother's B deficiency was discovered doing a blood test.

I suffer from a condition called persistent migraine aura and saw a neurologist about it, it's basically like having the symptoms of a migraine 24/7 but sometimes without head pain. Headache/migraine can have a lot of different causes though like dehydration, vit deficiency and stress. Some people suffer more symptoms than others. MRI's usually don't show anything abnormal.

Hey, I'm back from Finland, later than I expected. I was at home already, was just not really feeling like going online...
It's the first time I ever noticed that the air can actually smell good. The moment I was back in Germany was weird cause of the bad smell of cars and stuff (I live in the city).
I would have never thought that the air where I used to live stinks badly.

My head felt way better when I was in Finland for some reason. Not exactly alot, but at least a little better.
When I got back in Germany it was the same as before...
I think it has to do with the air. I mean, I haven't seen so many trees in my entire life, lol.

Pretty much everything was checked that is checkable. And yeah, the symptoms are getting worse as time passes...
I first too thought that I should focus on physical causes, but so many things were checked by several different kind of doctors and hospitals...I kind of gave up on that already.

I'm usually never stressed and I wasn't stressed at that time at all.

I got that tested. My blood pressure is just fine.
But still I pretty much have the things you just mentioned in both cases.

However, currently I'm taking antidepressants since a few days. Anyone got experience with that stuff?
Amitriptylin, 25mg each pill, is what I have to take.
For some reason I feel depressed since I'm taking these pills..

I don't really know what that migraine aura is like..
Though it sounds weird to have a migraine without actual pain?
I'm not dehydrated, got checked for vitamin deficiency (which I don't have) and I am generelly not stressed.
Did you get any help from that neurologist?